Saturday, August 29, 2015
Sat 9:38am -- As y'all know We are on vacation from Saturday to Saturday at an upstate NY lakeside resort.
And today is move out day. Check out is at 10am.
Wifey's parents were up here too from Monday on.
As her dad and I are both curmudgeonly packing up our cars while our wives pack orders at us wifey is saying to her dad...
"We're gonna pack up and check out at 10 and then stay down by the lake until about 12:30 and then use their public bathroom to change and then go out to breakfast and then head home..."
Her father says to her exasperated "we're just checking out and getting on the road...you never call it quits huh?"
To which wifey says without a second delay "Nope... Goonies never say die!!"
And I said "that's your daughter dad, she's the reason I'm on medication not my son..."
Yep it's why l love her and why she drives me crazy.
Wednesday, August 26, 2015
P"If it wasn't for that one thing..."
The wife and I find ourselves saying that phrase a lot lately.
"If it wasn't for that one thing...."
We try to give our son Kyle more independence as he gets older.
The independence we are striving for is partially to make him a better, more self-sufficient person and partially, selfishly to make our job as parents easier.
And things that used to be difficult years ago for many different reasons have now gotten easier.
And we could almost let him have his complete independence in many situations "if it wasn't for that one thing"
Here's a few examples from the past few weeks.
We went to an outdoor backyard party at another autism family's house a few weeks back. They have a ton of playground equipment in their backyard and wifey and I kept our distance and his Majesty was playing appropriately on their playground stuff for long periods of time.
And wifey and I stayed on their deck quite far away and let him do his thing... I actually had a beer! And all was kinda right with the world... "if it wasn't for that one thing"
He kept trying to eat the playground chips on the floor of their playground.
This playground had those chips made of those recycled tires.
Then we went to the Jersey shore a few times this summer and went to the beach and the king had a grand old time and we could sit in our seats and leave him be for the most part "if it wasn't for that one thing" ...he was throwing sand.
In the past he would pick up sand and drop it over and over and over which we learned to live with but this year he decided that he wanted to throw the sand too. So anytime he got anywhere near another human being wifey or I had to intercede and redirect him.
And then we come up to our upstate NY Lake vacation and we check into our room and he's acting quite independently and he's quite self-sufficient bouncing on his ball and choosing videos on iPad. So independent, that wifey and I think we have the time to leave him be and unpack for the week. And "if it wasn't for that one thing" we could've done that.
The one thing here was just putting all the nastiest stuff in his mouth. The few things with the most germs that you wouldn't want your kids to put in their mouth from a hotel room.
The remote control, the telephone, the room key, the couch cushions.
And then we go down to the lake, the lake we've been coming to every year, and yay he's not throwing sand here...
We can leave him be and let him do his usual sand stim on the lip of the water. We can sit and not pester our 12 year old son every 15 seconds..."if it wasn't for that one thing"...
This year, for the first year ever, he discovered the rocks in the lake. He wants to throw them, and eat them!
So every 25 seconds it's "put the rock down buddy", "don't throw the rock buddy", "not in your mouth buddy"
Those are the 4 examples that I remembered but there's tons more. I feel like we are always saying "if it wasn't for that one thing" lately.
And don't get me wrong, this whole idea of "if it wasn't for that one thing" can be viewed as a positive.
In many of those situations there used to be 10 things. And now based on Kyle maturing some and wifey and I maturing some and learning not to sweat the small stuff it's down to one thing.
So going from 10 things down to one thing is a positive...
But boy oh boy if it wasn't for that one thing things would be so much easier!!!
What are some of your "if it wasn't for that one thing" moments?
Friday, August 21, 2015
We go to a lake town in upstate NY every August.
We stay for 7-9 days and we stay at a hotel that gives us a full kitchen.
So every year in the week leading up to our trip wifey uses our home office as her staging / packing area. She uses the home office because we normally gate it off from Kyle and he doesn't normally care to go in there so she knows he won't mess with it
As you can imagine along with his clothes, she packs a TON of food and a TON of the king's toys, books, etc and of course his big green ball.
Here's a pic of the staging area last August. This was taken 4 days before we left.
And here's what the minivan looks like when it's all packed up.
This pic was taken last august but it could have been any year. I take this pic every year before we depart and every year it looks almost identical.
Anyway this year wifey couldn't use the
Home office as a staging area cuz Kyle was scheduled to have some therapy in there in the days leading up to our trip.
So she found a great spot to store all the food stuffs that we are bringing.
Looks innocent enough. But behind it lies a secret... A secret stash...
She put a blanket over it and his majesty never discovered it. :)
And then for the rest of the stuff she has been using Kyle's bedroom as her staging area...
He literally only sleeps in there so it doesn't get in his way and he hasn't really messed with it.
So that's it. I just wanted to show you how wifey does it cuz I find the whole thing fascinating and I'm living it so I thought maybe y'all would find it fascinating or at least interesting.
and what my job you ask? I have the most important job! I packed my clothes and I pack and plan out all the Kings medicines for the week,
and i pack and plan out all our electronics and chargers and adapters (iPads, laptops, DVDs, phone chargers, headphones, etc)
Plus i drive the 4 hours there and back.
Basically i do all the daddy duties!
Anyway that's it. I thought some of you my find a slice of our lives interesting.
We're off tomorrow! Look for the 2015 picture of the minivan all packed up hopefully by about 11am.
Over and out!
Saturday, August 15, 2015
Saturday 11:39am -- Here's a quick video of my autistic son bouncing on his ball, swinging on his swing, while eating rice cakes.
His autism service dog Paula is waiting for some crumbs to drop while the Black Eyed Peas play in the background
Friday, August 14, 2015
Here's a quick video blog post of me hiding out in my car before heading in to my crazy autism household on a Friday evening...
I explain why in the video...
If you're gonna shop Amazon anyway, can I ask that you enter Amazon by using the search box above? This way I can make a little money. This blogging thing has been awesome & life changing for me... but I must admit that it's taking up a lot more time than I ever thought... so if I can make a few bucks it'll make it easier for me to justify....Love you all! Thanks!!
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